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Considering buying a genetic health test? Information for donor conceived people There are lots of companies that sell genetic tests directly to the public. It is important that people think carefully before buying genetic tests in the UK, especially tests that claim to provide information about health. If you have questions about the results, you…

Please find below a prospective Family Health History Questionnaire for historic sperm, egg and embryo donors. This questionnaire is a template guide that you can adapt for your own purposes should you wish. Note that the questions in the questionnaire are the types of things that Donor Conceived people may want to know. Please note…

Please remember that even for things that are screened for now, it is only screening. It is not designed to detect all carriers. For example, the Cystic Fibrosis (CF) screening will detect 90% of CF variants in white western European populations, in south Asian populations it is about 50%. It doesn’t matter how much screening…

Please read this post first as it explains what information you were entitled to request at 16 years old: Donor Conceived and just turned 16 years old? What a DCP can request at 18 years old If you are a Donor Conceived person (DCP) who was conceived in a UK licensed clinic, once you turn…

If you are a Donor Conceived person (DCP), once you turn 16 years old you can apply, independently from your parents, to the HFEA for some identifying information (assuming you were conceived in a UK licenced clinic). Once you are 18 years old you will also be able to join Donor Conceived UK and attend…

The Human Fertilisation and Embryology Authority is the UK’s independent regulator for fertility treatment and research involving human embryos. HFEA Records – What records the HFEA actually keep HFEA: Waiting Times A statement from DCUK on incorrect HFEA donor information in response to Channel 4’s investigation

Donor Conceived UK has been approached by a number of Donor Conceived People (DCP) where the information released from the HFEA Register has not matched the information that people have received from Direct-to-Consumer Genetic Testing (DTCGT).  Donor Conceived UK alongside PROGAR (a special interest group on assisted reproduction), raised this issue with the HFEA in…

If you are new to Donor Conceived UK…Welcome! Donor conceived people have historically been a marginalised and invisible community yet there are over 100,000 DCP in the UK. We were not a party to the contract that others signed but affects our lives. We want to hold the key to our own genetic truth. Donor…

“Apart from my half siblings I’ve never met other donor conceived people so it was really nice to say the things that are in my head and have other people who feel the same way. It felt very safe and understanding.” – Jade “Late discovery has been a traumatic episode in my life and something…

We recommend that all DCP, historical Donors and Intending and Recipient Parents read “Brave New Humans” by Sarah Dingle. Unfortunately the printed version is out of stock in the UK and there are no plans for a reprint. If you would like to request that the publishing company run another print, please contact them directly…