Category: Uncategorized

  • The instinctive pain of kinship loss

    ‘Each person is part of a deep kinship system. Like an endless chain, the genetic code connects us with our ancestors and influences our life and destiny’   Families are more than just DNA. I know this, but the point I’m wanting to make here is that it’s not just about the ‘Donor’ in a donor…

  • Epigenetic Inheritance

    Epigenetic Inheritance is a scientific theory that Trauma is heritable and your ancestors pain may still be living within you. This inheritance occurs through epigenetic markers like DNA methylation and histone modifications, which can be passed down and influenced by environmental factors such as diet or stress, potentially leading to heritable traits or disease susceptibility.

  • Guidance for direct to consumer ‘health’ tests

    Considering buying a genetic health test? Information for donor conceived people There are lots of companies that sell genetic tests directly to the public. It is important that people think carefully before buying genetic tests in the UK, especially tests that claim to provide information about health. If you have questions about the results, you…

  • Family Medical Questionnaire for a Donor

    Please find below a prospective Family Health History Questionnaire for historic sperm, egg and embryo donors. This questionnaire is a template guide that you can adapt for your own purposes should you wish. Note that the questions in the questionnaire are the types of things that Donor Conceived people may want to know. Please note…

  • Historical Donor Screening

    Please remember that even for things that are screened for now, it is only screening. It is not designed to detect all carriers. For example, the Cystic Fibrosis (CF) screening will detect 90% of CF variants in white western European populations, in south Asian populations it is about 50%. It doesn’t matter how much screening…

  • Donor Conceived and just turned 18 years old?

    Please read this post first as it explains what information you were entitled to request at 16 years old: Donor Conceived and just turned 16 years old? What a DCP can request at 18 years old If you are a Donor Conceived person (DCP) who was conceived in a UK licensed clinic, once you turn…

  • Donor Conceived and just turned 16 years old?

    If you are a Donor Conceived person (DCP), once you turn 16 years old you can apply, independently from your parents, to the HFEA for some identifying information (assuming you were conceived in a UK licenced clinic). Once you are 18 years old you will also be able to join Donor Conceived UK and attend…

  • The HFEA

    The Human Fertilisation and Embryology Authority is the UK’s independent regulator for fertility treatment and research involving human embryos. HFEA Records – What records the HFEA actually keep HFEA: Waiting Times A statement from DCUK on incorrect HFEA donor information in response to Channel 4’s investigation

  • A statement from Donor Conceived UK (DCUK) on incorrect donor information in response to Channel 4’s investigation

    Donor Conceived UK has been approached by a number of Donor Conceived People (DCP) where the information released from the HFEA Register has not matched the information that people have received from Direct-to-Consumer Genetic Testing (DTCGT).  Donor Conceived UK alongside PROGAR (a special interest group on assisted reproduction), raised this issue with the HFEA in…

  • Welcome to Donor Conceived UK!

    If you are new to Donor Conceived UK…Welcome! Donor Conceived UK was created in January 2024 following a Consultation with Donor Conceived people in the UK. Please read the DCR RP/DCUK Consultation document. If you have just found out that you are Donor Conceived, please read this post first: What to do when you first find out you…